Tag Archives: awareness

What Does Awareness Mean?

I’m told that June is “Myasthenia Awareness Month” in a few states that have acknowledged its existence. I have Myasthenia Gravis, so I suppose I should care. The truth is, I’m always a little perplexed about what it means to be aware of an illness. I understand that it’s important for society to accept people with Autism, to get a better handle on their sensory needs. I know what it means when someone says, “I need you to understand what it means for me to be bipolar. Sometimes I can’t help how sad or elated I feel.” I get all that, but so what if the entire United States (let’s not even worry about the rest of the world getting any of this) understands what it means to have Myasthenia Gravis? What does that mean for me and the 20,000, or so, other people in the US suffering from this rare neuromuscular disease?

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